Bluebells

Fred in the bluebells

This is the place that you have always known, this village, these woods. They remain the same and yet they are forever changed, now you’re not here to sculpt them. The shop on the corner is still there, but now Liz looks a bit scared when I walk in. The paperboys come to return their … Read more

Life and loss in lockdown – Fred’s story

Covent Garden

You never think it will happen to your family until it does.

Suddenly we were locked down. Our holiday was cancelled, Fred’s central line meant he could no longer go swimming.  We were not allowed to travel anywhere more than 30 minutes from our hospital. I carried a thermometer in my handbag to check for temperatures.

The Tsunami of Grief

waves

The thing about tsunamis is the bit before the wave. A monumental rupture happens, hidden underground, miles away and unseen – but the wave doesn’t come straight away. First there is the drawback. It’s the moment where all the water gets sucked out to sea, where the power builds. It’s the part where the fish are left flapping on the beach and no one can quite work out what’s going on. And it’s the part that people see.

Why children don’t fight cancer

war on cancer

How we talk about children’s cancer matters. It’s easy to worry about saying the right thing, the wrong thing, and often people end up saying nothing at all, which is the worst of all. The language used usually involves wars, battles, fighting, bravery. In many ways it’s odd. We never say a child lost their battle against an articulated lorry, but cancer it seems is up for the fight.

Carry me home

gingerbread house

There are many kinds of mother you can be.  Tiger mother, Alpha, Helicopter.  I’ve never really seen myself as any of them, and certainly tried to avoid a few.  If I had to classify my parenting style, I’d say that I carried stuff.  To give it a festive flavour, if this were a nativity, I’d be the donkey. 

Get down from there – life with childhood leukaemia

Life with Leukaemia

A month ago today, I was sitting in Regent’s Park, reading a book, drinking coffee.  I had an evening at the theatre planned.  For the first time in years I felt that everything was under control. I’d spent the previous evening watching Barbra Streisand. I would never to make it to the theatre.  6 hours … Read more